The Daily Hailey

Yesterday’s blog about Brady being able to move his foot was met with so much beautiful support! Its not that I didn’t think people would care, but I didn’t think it would be SUCH well received news, because in the whole big world, two toes and one ankle can be seen as pretty small. But you don’t realize the gravity of it! Except it seemed like you all did 😘 So thank you for sharing in our joy and making that new discovery just all the more enjoyable!

I was SO excited to go to the hospital to see Brady today. I haven’t been to one of his physio sessions in a while, and I was going to be able to be at one this morning. I made Brady promise not to tell his PT until I was there, which was a little selfish, maybe, but I knew he understood I just wanted to be part of the excitement. And guys, it was SO worth it!

We met with her and Brady asked if we could start the session sitting on a mat somewhere, so we could show her something we discovered over the weekend. Her eyes lit right up, undeniably, and she got excited.

“Ooooo! What are you going to show me?? Little bit of movement? Little bit?! I LOVE new discoveries! Show me!”

Brady beat her to a mat, got onto it, got his shoes off, and started moving his foot up and down at the ankle. Dorsiflexion, its called. She squealed and celebrated with us.

“Its a lot! Like, not just a flicker, even. Thats a LOT!”

It was so validating to celebrate with her and have her be so excited alongside us. In the great big world, a foot moving up and down a little doesn’t look like much, but when you know the history, or you’ve walked/rolled through rehab with someone, you can see the victory. And she saw it 🙂 It was SO wonderful!

We ran out of the rest of his PT session with some exercises on his hands and knees, as well as some walking with a different brace. Brady’s brace was shipped off again to Saskabilities for some tweaking, so today he tested out a might lighter, smaller, brace that allows for more movement but less stability. He used it beautifully! It didn’t trip him up at all! I was SO impressed!

That PT session just felt victorious and fun and SO productive! We went from there back to Brady’s room and played some cards. In that time, one of the residents on the ward came by to touch base about Brady’s clonus, and Brady showed her his new movement, too. She was up out of her chair, so excited with us!

It was just immensely validating to have so many of you celebrate with us yesterday over the blog, Facebook, and over text, and then to celebrate here on the ward with his medical team today.

Thank you Lord, for constantly answering prayers, pouring in the good news, and reminding us just how closely you’re watching! We we feel SO cared for.

Today, we witnessed miraculous change in Brady’s right leg! Medicine is school, and science is really smart, but God cannot be denied!

This morning, when asked “Can you wiggle your toes?” during around, Brady wiggled his toes. The toes on the right foot. The toes on the foot that doesn’t move on its own.

That may sound small, but it is a HUGE victory! Brady has worked SO HARD to move that foot, and we’ve stared at it, willing it to move, but no dice, ever. Until today.

When I got to the hospital, he showed me excitedly how he could move his toes. His feet have moved teeeeeny tiny bits in the recent weeks, but we’ve seen how its mostly his thigh muscles straining and compensating. This was undeniably the toes on his right foot, moving independently. He said his toes were moving even more than they did earlier in the day!

As he showed me, and we celebrated, he touched his toes to point out which ones he felt were doing most of the work, and he learned in that moment that he has SENSATION in those toes!!! Now, Brady has some sensation in that right leg. Mostly, if I touch his leg, he feels some pins and needles. Recently, its changed a little, and instead of pins and needles, sometimes touch feels like pressure. So his senses have been trying, but not quite getting it 100%. Close, though 🙂 Today, we discovered that two of his toes have feeling! When he touches them, he can feel his hand touching them! Again, maybe it sounds small, but it isn’t. Its incredible!

As if this wasn’t enough, he heaved his leg into the air where there was no pressure or resistance, and moved his foot at the ankle up and down, up and down, over and over. We laughed like idiots and celebrated as his foot moved with so much confidence!! Praise the Lord for progress! For nerves healing and changing! For muscles strengthening! For endurance and hard work! For miracles!

We spent the rest of our time together going for walks on the ward, playing cards, eating lunch, and watching an episode. It was normal, but a little lighter than usual. It felt so good. So hopeful.

Just a few hours later, Brady’s foot moves even better, further, smoother. Its visibly improving.

Thank you Lord, for continuing to restore Brady’s body. Your will be done.

We all thought last year was a bit of a crap shoot, but goodness. In our family, 2020 was a cake walk in comparison to 2021!! I praise the Lord for 2020, because for our family, is was a year of thriving! If we hadn’t been granted the ability to work as hard as we did, and accomplish all we did, this coming year would be a LOT hairier!

Though we didn’t spend Easter Sunday how we usually do, we did still enjoy it. We spent time outside at our special park, enjoyed a picnic lunch of cinnamon buns and cheese buns, and the kids were gifted a delicious treat from, of all people, our critical illness insurance representative!!

It wasn’t sunny and warm, but it wasn’t miserable by any means. It was fresh and light. I’m so grateful we have our little park to visit from time to time.

The main point of today is that Jesus rose from the dead. Praise the Lord for taking our sins from us so we could LIVE! For carrying our pain on the cross. For knowing and loving us imperfect, messy people on that deeper level. For God grace, we praise Him!

Today, Brady and I got to walk together, just the two of us. I wish I had pictures, but I was trying to be very concentrated on him and his steps, so that’ll have to come down the road. For now, we’re just enjoying our relaxed walk through the rehab ward. He is getting SO smooth on his forearm crutches, its crazy! With a well fitted AFO and a strong pair of shoes, plus his growing confidence and stability, he is well on his way to going for walks without any assistance. I am SO proud of his immense progress!!

Together, we walked from his room to each end of his chunk of the rehab ward three times in one walk. Three full laps of the hallway. The furthest he’s ever walked in one walk! He showed me the sunroom at one end of the hall, with couches and flowers and movies. Seriously though, don’t stand too close to the windows. You do NOT want to fall into those plants!

Once his body was tired enough, we headed back to his room and played some skipbo. I destroyed him for a couple of rounds, and then he crushed (crutched) me a couple of times. It was a really really nice way to spend time together.

We had such a nice time, but then I realized I couldn’t count and I had been at the hospital considerably longer than I thought I had. So I packed it up and headed on out. It was sad to leave. Today felt like SUCH a nice visit, I wish I could’ve stayed and stayed. But I’m grateful for the time I do get, and that its possible for me to go just about every day.

I am SO proud of Brady, and the amazing strides he is making!! As we hone in on his projected discharge day, we pray God’s covering over him. Please feel free to do the same.

We had a very nice outing this morning. Its another one of those outings I can’t talk about in too much detail on here, but I am HAPPY to share more privately 🙂 If you haven’t caught my drift about whats all going on, please just message me. I have to be careful. And I can only share a fraction of the pictures I took. Just take my word for it that it was a really beautiful couple of hours back at that playground just behind Kinsmen.

“Look at me! I’m Daddy!”

Laela found some crutches at the park.

Meanwhile, the bike tires they were rolling around last week were still there, and Rowan decided they were a wheelchair! It was actually really fun to see them pretending that way, without any hangups or discomfort. Just accepting of the new norm.

There was a moment where Solly fell, kind of, but not really, and wanted to have a really big cry about it. Laela is working hard to be a caregiver, and right away went to him and tried to bring him to me. It didn’t work out. Or it did 😆 It was a little funny.

I loved her effort, and I secretly enjoyed the dynamic when he fell and she got upset with him. It was solid 👌

Aaaaand the last picture I have from today is just of Wavy being beautiful, as she does, so effortlessly.

She was doing all kinds of daredevil things today, no fear whatsoever. Is it ok that I’m scared of her fearlessness? Because I absolutely am.

The weather cooperated beautifully, and everyone really enjoyed their time outside and our new special park. We made friends last week who even showed up again today, and the kids all got to play with some familiar faces.

Everyone is home now, nice and tired, my mom and I included! Whew! Those outings sure take it out of you, but they are SO worth it.

But, I can’t really talk about it…

Today was an exciting day 🙂 I’ve been looking forward to it since last week when it was still waiting for official approval. When approval went through, we confirmed schedules, and all was set.

This morning, I was cleared to be Brady’s “assistance” when he’s on crutches, and transferring to and from the van. His physical therapist watched him do a few things, and advised me how she would brace him in what setting, all the while saying “less is more,” saying that Brady is so stable and capable, and its more about being on than hands on, if that makes sense.

Today, I got to take Brady out! JUST THE TWO OF US!!!

Going out meant Brady getting in and out of the van, using his crutches and chair out and about, without his physical therapist. It also meant me getting acquainted with his wheelchair, taking it apart and reassembled properly. I assume that’ll get quicker and easier and more fluid as time goes on, but it wasn’t complicated, so I already feel pretty comfortable with that.

Brady has been wearing shoes from the rehab ward this entire time, as they’ve been sending his AFO (ankle brace) back and forth to Saskabilities for tweaks and modifications. Now that its almost exactly how they want it, we booked a field trip to Brainsport to get Brady some shoes that are actually his, that fit how they should, that he likes. We went in with some ideas, with plans to buy two pairs with the gift card someone anonymously gifted us earlier on. One pair that he was hoping for fit perfectly, and they offered to ordered them for him in the color he preferred. The other pair he had his eye on was a bit of a bust because they didn’t come in wide. So, while it wasn’t his very first choice, we left Brainsport with a pair of shoes that fit beautifully, but aren’t his favorite style. Still, they are SO stable, and he is truly happy with this choice.

When we got back to the van, we just happened to notice the early time, and a Subway directly beside Brainsport. So we decided to take gentle advantage of our time away, and we grabbed some subs and went to eat them by the river. It was SO calm and nice out. I think it did Brady good to just smell the fresh air.

It felt like a day of accomplishments! Now, Brady and I can go for walks together over the long, long weekend, and practice walking with crutches without a therapist or a nurse. It frees him up in a lot of ways, and brings him closer to being able to walk with his crutches unassisted! Thats the direction he’s moving in, and he is excited about it.

Another milestone from today has left me with a mix of emotions. At first, it was a little comical, but then I cried on the drive home about it, so there’s that.

While we were at Brainsport, the man helping us was grabbing a size of a shoe, and other employees were helping other customers. Suddenly, someone was right next to us. All they said was “What the hell, guys?” And as you know, in masks, its harder to recognize people immediately. But it came within just a few seconds. It was our chiropractor. Dr. Mike. And we haven’t seen him in a LONG time. It was the first time we ran into someone who knows us pretty well, but has no knowledge of whats been happening. He just stood beside us, eyes wide with genuine concern. he finally uttered “Whats going on?!” Brady kind of chuckled and told him he had a spinal tumor removed in February. Dr. Mike asked the height of injury. T7-T11. They had a very brief discussion of details. But then his salesman resurfaced, as did ours, and we got back to our fittings. We ended up leaving before he did. As we walked past him, he just looked at us and offered up a feeble “Good luck, guys. I hope you’re ok.” I thanked him and we kept walking. I looked back a couple of seconds later, and he was completely slumped forward, shaking his head. Dr. Mike is a very upbeat, boisterous guy. I have never seen him so solemn. That felt like a shakedown. It was a first, and it won’t be the last time, either. Thats going to be a hard part of all of this, I think. More for Brady, of course, but we’ll all feel it.

Today was a strong day together. I truly enjoyed our outing. We did great. Nothing was ruined or wounded. Only one really zinger moment, but we can get past that easily. Brady got shoes that he can walk so much more confidently in, and now he has more confidence and independence. It was a great day.

My mom has been staying with us for a while now, which has been such a blessing to every member of our family. She makes it possible for me to go to the hospital as often as I do. I tried to list out all the tasks she accomplishes, but there were FAR too many. Most importantly, everything she does, she does willingly, warmly, and lovingly.

Uprooting her life and taking us on isn’t necessarily an easy task. Save for the obvious – five grandchildren and one incredibly emotional child to care for. Beyond that, my mom keeps her house COLD and I do not! We’ve turned the temperature down, but she still closes her bedroom door and opens her window up in the evening to positively BLAST her room with the cold! 

And then last night, it finally happened. Her window froze. Open. 

Resigned, she texted me and asked me up in my room and asked if I could come help her try and close it. 

I imagine it was quite a sight, my mom in her shorts and t-shirt, me in my shorty robe, trying desperately to loosen the window. We could neither close it, nor open it further. I called Brady and put him on speaker so he could be part of the chaos. He was stumped, too. All four corners were loose, so we started to worry that is was just jammed. Open. In cold weather. 

Finally, we solved it. Mom had the answer. 

She took her hairdryer outside with an extension cord, and blowdried the track while I reefed on the window from inside. We belly laughed the entire time, and finally, the window slid just a little. I reefed on it one more time, effectively slamming it right in my moms face, but she understood. We celebrated, and her room was freezing, just like she likes it, hahaha! 

Aaaaanyway, we had a laugh. It was nice to have Brady along, too. Felt almost normal. Almost.  

I cannot do extra. Plain and simple. Very little “extra” is within my grasp right now. These are trying times, and I’m working hard to stay afloat.

Months ago, I spoke to an OB about our fertility issues, and she wanted to set me up with a procedure to check my uterus and tubes out. It took months to book, but suddenly, it was on my calendar for this week. Of all things, of all times, fertility is pretty far down our list of priorities, so I called and tried to reschedule it. I said I was fine to book it way down the line. Months. Whatever. But they told me there is only one doctor in the province who does this exact procedure, and he was about to go on sabbatical. So if I wanted to reschedule, I would actually just cancel, and see what happened. And I did not want that. So I kept the appointment and accepted the reality of having to push through “extra.” And that was today.

I won’t go into crazy detail, but it was an uncomfortable appointment. I was very well cared for an encouraged by the three medical staff members in the room with me. Everything was explained along the way, and I was reassured at every step. It did turn out to be worthwhile, though, and follow up will be done! Nothing is blocked, nothing is growing, nothing scary. Information was gained, and I’m so grateful. The doctor performing the test told me he was happy I came in and we got some answers, and told me I had done really well. I apologized for flinching and struggling a little, and the room reassured me that I had been totally cooperative and everything was clear and uncomplicated. They were really loving. I felt safe.

That appointment happened when I usually am visiting Brady at the hospital. Instead of being able to go to him directly afterwards, he then had an appointment at 1:30. So today’s visit will be at an entirely different time than usual, but I still get to see him, and thats what counts!

Thank you, mom, for driving me.
Thank you, friend, for keeping Solly for lunch.
Thank you, Lord, for bringing the snow yesterday, not today, and making my appointment possible.
And for the beginnings of answers.

Yesterday was a really nice, really special day. But as tends to happen after days that carry some emotion, some people struggle the next day. We’ll pair some emotional weight with the gloomy weather outside, and my big kids were so uninterested in going to school today :/ Poor big kids.

Dekker was a little grumpy, but not too bad. He was expecting a snow day, because of the bad forecast, so when he found out there was a change of plans, he was a little discouraged. Now, don’t get me wrong. Dekker actually really likes school! But he is very much a homebody, and a homebody who doesn’t like unexpected change. So, he wasn’t thrilled this morning, but he was ok.

Laela, on the other hand, couldn’t quite nail down her feelings. She insisted she felt sick, but ate a normal breakfast and drank milk no problem. She had a tummy ache and a headache. She was sluggish to get ready for school, and said she didn’t want to go. Yet she loves school. So I decided to tuck her back into her bed with a book and let her stay home at least for a little bit.

She surfaced after about an hour saying she felt mostly better and wanted to go play downstairs. The moment I suggested that, if she felt well, maybe she could go to school, she got so upset and her story went all over the place. It was pretty obvious to me, as her mama, that she was overwhelmed more than sick.

I held her close for a while on the recliner, and debated whether I should bring her back at lunch, or give her the day, or take her right in. I just didn’t know. I tucked her into the chair and called the school to see about schedule blocks and what was best. When I came down, I had decided to take her to school, and as soon as she heard that, she popped up and started getting the final stuff ready to go. She wasn’t upset at all. Just accepting.

I drove her to school and she was perfectly content going in. Didn’t really feel sick anymore at all.

I appreciate her school so much, for taking the time to think about the underlying issues in my children’s lives, and not just dismissing them. Knowing where behaviours come from is SO important. The kids are grieving and struggling in their own ways, and I can be confident sending them to school, that their teachers are caring for them so well, considering their extra needs, and being soft and gracious with them.

Hopefully being back in the routine of the school day helps her heart.

Get it? No? Thats ok, it doesn’t make sense, anyway. What I’m trying to say is that today is the day before the forecasted spring blizzard. Can’t wait for that 🙄

However, because of that impending doom vibe, just about everyone around here is spending time outside! All through town, and all along Spadina in the city, people are walking their dogs, playing with their kids, running, riding bikes, and just generally soaking up the sun.

I mention Spadina, because we, too, were outside today. Its an outing I can’t talk much about. Maybe you can guess, or maybe not, and either way is ok. I don’t have many pictures I can show you, either. I have a couple, though.

We were close-ish to Kinsmen Park. It was SO warm out. The kids played, and we had some Wendy’s at a nearby picnic table. We chatted with some people and made some new friends. The kids found lone bike tires and ripped around the paths, rolling them. We sunbathed and rested.

Good weather. Good food. Good company. The BEST company.

But again, I can’t really talk about it…